Throughout 2019, the TSC Alliance will celebrate our sapphire, 45th anniversary. This milestone is only possible due to the tenacity of untold numbers of tuberous sclerosis complex (TSC) community members, physicians, researchers, staff and board members, partner organizations and other supporters who help us work toward our mission to find a cure for TSC while improving the lives of those affected.

As we reflect on our history, we will celebrate the accomplishments that make up our blue brick road. In this issue we look back to the 1970s and the founding of our organization.


“The four of us shared perspectives, dreams and even anger at our children’s fate. We combined our contacts and our skills to make our vision a reality and we worked hard! We met, talked, planned and slowly, but surely, an organization began to take root and, over decades, spread its wings to become the TSC Alliance.”

-Susan McBrine, reflecting on starting the TSC Alliance with the three other founding moms