Are you an Adult with TSC or a Caregiver of an Adult with TSC?
Dr. Agnies Van Eeghen and her research team at Erasmus Medical Centre in The Netherlands are conducting a research study to develop a questionnaire to investigate the burden and restrictions
Read More: Are you an Adult with TSC or a Caregiver of an Adult with TSC?Phenotypic Variability in Tuberous Sclerosis Complex (TSC)
Dr. Narayanan and colleagues at the Translational Genomics Research Institute (T...
Read More: Phenotypic Variability in Tuberous Sclerosis Complex (TSC)SPARK for Autism Research Study, Boston Children’s Hospital
Boston Children’s Hospital would like to invite individuals of all ages diagno...
Read More: SPARK for Autism Research Study, Boston Children’s HospitalBaby Brain Imaging and Behavior Study (Baby BIBS)
Researchers at the UCLA Center for Autism Research and Treatment (CART) are look...
Read More: Baby Brain Imaging and Behavior Study (Baby BIBS)JASPER Early intervention for Tuberous Sclerosis
Additional Funding Available to Support Travel to Participate in an Early Interv...
Read More: JASPER Early intervention for Tuberous SclerosisDr. David Kwiatkowski at the Brigham & Women’s Hospital in Boston Seeks Biospecimens for LAM/TSC Research
His research involves analyzing left over fluid and tissue samples from chest an...
Read More: Dr. David Kwiatkowski at the Brigham & Women’s Hospital in Boston Seeks Biospecimens for LAM/TSC ResearchResearcher Seeking Donation of Tissue Samples from Your Surgery
Dr. Elizabeth (Lisa) Henske’s laboratory has a new project to develop cellular...
Read More: Researcher Seeking Donation of Tissue Samples from Your SurgeryDose-Ranging Efficacy and Safety Study of Topical Rapamycin Cream for Facial Angiofibroma Associated with Tuberous Sclerosis Complex (TSC)
A new clinical trial for individuals with TSC and facial angiofibromas who are 6...
Read More: Dose-Ranging Efficacy and Safety Study of Topical Rapamycin Cream for Facial Angiofibroma Associated with Tuberous Sclerosis Complex (TSC)Clinical Trial for Individuals Diagnosed with Tuberous Sclerosis Complex (TSC) and Cutaneous Angiofibromas
We are currently conducting a clinical trial for individuals diagnosed with TSC ...
Read More: Clinical Trial for Individuals Diagnosed with Tuberous Sclerosis Complex (TSC) and Cutaneous AngiofibromasTuberous Sclerosis Research Opportunity – Please Help Us Better Understand Factors That Impact the Decision to Undergo Epilepsy Surgery
We have a brief survey (20 minutes) addressing caregiver satisfaction with epile...
Read More: Tuberous Sclerosis Research Opportunity – Please Help Us Better Understand Factors That Impact the Decision to Undergo Epilepsy SurgeryEfficacy and Safety of Lacosamide as Adjunctive Therapy in Subjects ≥1 Month to <4 Years with Partial-onset Seizures
Description: UCB Biosciences, Inc. is conducting a clinical trial to evaluate th...
Read More: Efficacy and Safety of Lacosamide as Adjunctive Therapy in Subjects ≥1 Month to <4 Years with Partial-onset SeizuresEngage Therapeutics Clinical Trial
Engage Therapeutics is a small biotech company working to improve life with epil...
Read More: Engage Therapeutics Clinical TrialTuberous Sclerosis Complex Travel and Lodging Patient Assistance Program
NORD’s Tuberous Sclerosis Complex Travel and Lodging Patient Assistance Progra...
Read More: Tuberous Sclerosis Complex Travel and Lodging Patient Assistance ProgramPreventing Epilepsy Using Vigabatrin in Infants with Tuberous Sclerosis Complex (PREVeNT Trial)
Enrollment still open! Where: TSC Clinical Research Consortium sites at Boston C...
Read More: Preventing Epilepsy Using Vigabatrin in Infants with Tuberous Sclerosis Complex (PREVeNT Trial)45th Anniversary Flashback: The 2010s
Throughout 2019, the TSC Alliance will celebrate our sapphire, 45th anniversary....
Read More: 45th Anniversary Flashback: The 2010sDecember Volunteer Opportunities Available
Champion Our Cause: Join the TSC Alliance Volunteer Movement “The smallest act...
Read More: December Volunteer Opportunities AvailableSubmit your Nominations for our 2019 Volunteer Awards!
The TSC Alliance will honor up to four individuals, one Community Alliance and o...
Read More: Submit your Nominations for our 2019 Volunteer Awards!We are Seeking Volunteers for the TSC Biosample Repository
The purpose of this research project is to collect a sample of blood, tissue, fl...
Read More: We are Seeking Volunteers for the TSC Biosample RepositoryImportant Information About Changes to Access and Availability of Generic Everolimus and Afinitor®
As of December 13, 2019, important information is available regarding changes to...
Read More: Important Information About Changes to Access and Availability of Generic Everolimus and Afinitor®Upcoming Adult Topic Calls
Are you an independent or semi-independent adult with TSC? If so, please join us...
Read More: Upcoming Adult Topic CallsUpcoming Community Events
Chicago Post-Holiday Party Sunday, January 12, 2020, 5 to 7:30 pm Alexian Brothe...
Read More: Upcoming Community EventsJoin Us for a Free Webinar on TSC-Associated Neuropsychiatric Disorders (TAND)
TAND Webinar: Effective Behavioral Treatments Presented by Dr. Nathan Call...
Read More: Join Us for a Free Webinar on TSC-Associated Neuropsychiatric Disorders (TAND)TSC Clinic Experience of Care Survey
The TSC Alliance would like to know about your experience at the TSC Clinic you/...
Read More: TSC Clinic Experience of Care SurveyListen and Subscribe to TSC Now
TSC Now is the TSC Alliance’s podcast series, which features interviews wit...
Read More: Listen and Subscribe to TSC NowDecember Note from the President & CEO
As I reflect on 2019 one theme that runs through most of what we accomplished is...
Read More: December Note from the President & CEOChanges to TSC Matters in 2020
The TSC Alliance is transitioning to a new email platform in 2020. Be on the loo...
Read More: Changes to TSC Matters in 2020