February 2020 - TSC Alliance

February Volunteer Opportunities Available

Champion Our Cause: Join the TSC Alliance Volunteer Movement “The smallest act of kindness is worth more than than the grandest intention.” – Oscar Wilde The TSC Alliance thrives on the

Tuberous Sclerosis Research Opportunity

Please help us better understand factors that impact the decision to undergo epi...

Phenotypic Variability in Tuberous Sclerosis Complex (TSC)

Dr. Narayanan and colleagues at the Translational Genomics Research Institute (T...

Ongoing Biosample Studies

See below for ongoing studies....

Ongoing Facial Angiofibroma Trials

See below for ongoing trials....

Ongoing Epilepsy Trials

See below for ongoing trials....

FDA Approves Sabril Label Expansion For Patients 2 To 10 Years Old

On January 24, the TSC Alliance learned the US Food and Drug Administration (FD...

Listen and Subscribe to TSC Now

TSC Now is the TSC Alliance’s podcast series, which features interviews wit...

#March4TSCresearch Update

On March 4, 2020 more than 120 volunteer advocates from across the country will ...

Seeking Volunteers for the TSC Biosample Repository

To learn more about donating to the TSC Biosample Repository click here or con...

February Global Alliance Update

Last week, TSC Alliance Director of Government & Global Affairs Katie Smith...

TSC Clinic Experience of Care Survey

The TSC Alliance would like to know about your experience at the TSC Clinic you/...

TSC Alliance Announces New Improving Partnerships and Lives Grant

The TSC Alliance Improving Partnerships and Improving Lives Grant (IPaLG) is des...

February Note from the President and CEO

Following what was a truly inspiring 45th anniversary year,...