International TAND Research Project Awarded Funding
Congratulations to Drs. Petrus de Vries (University of Cape Town) and Anna Jansen (UZ Brussel – Vrije Universiteit Brussel) on being awarded funding from the Tuberous Sclerosis Association and the
Read More: International TAND Research Project Awarded FundingBid Now in Our Exclusive Comedy for a Cure Silent Auction!
The TSC Alliance’s 18th Annual Comedy for a Cure happens this Sunday, April 7...
Read More: Bid Now in Our Exclusive Comedy for a Cure Silent Auction!TSC Preclinical Consortium Meeting
The TSC Alliance launched the TSC Preclinical Consortium in 2016, in collabora...
Read More: TSC Preclinical Consortium Meeting2018 Volunteers of the Year
On Thursday, March 7, 2019 the TSC Alliance held its annual Volunteer Appreciati...
Read More: 2018 Volunteers of the Year45th Anniversary Flashback: The 1970s
Throughout 2019, the TSC Alliance will celebrate our sapphire, 45th anniversary....
Read More: 45th Anniversary Flashback: The 1970sApril Volunteer Opportunities Available
Champion Our Cause: Join the TSC Alliance Volunteer Movement “The smallest act...
Read More: April Volunteer Opportunities AvailableCongratulations Dr. Martina Bebin!
Congratulations to Dr. Martina Bebin, former TSC Alliance Board Member and TSC C...
Read More: Congratulations Dr. Martina Bebin!IEP Season is Approaching
If you need support in understanding your rights as a parent/caregiver of a chil...
Read More: IEP Season is ApproachingTAND Parent/Caregiver Survey: We Need Your Input!
As part of our TSC-Associated Neuropsychiatric Disorders (TAND) Initiative we...
Read More: TAND Parent/Caregiver Survey: We Need Your Input!Upcoming Step Forward to Cure TSC Walks
“And that is how change happens. One gesture. One person. One moment at a time...
Read More: Upcoming Step Forward to Cure TSC Walks#March4TSCresearch Update
Thanks to the incredible advocacy of our volunteers, over half of the House sign...
Read More: #March4TSCresearch UpdateUpcoming Adult Topic Calls
Are you an independent or semi-independent adult with TSC? If so, please join us...
Read More: Upcoming Adult Topic CallsBoston Regional TSC & LAM Conference
The TSC Alliance and The LAM Foundation are co-hosting five Regional TSC ...
Read More: Boston Regional TSC & LAM ConferenceComedy for a Cure 2019
On Sunday, April 7, 2019, the 18th Annual Comedy for a Cure® will be held at A...
Read More: Comedy for a Cure 2019April Note from the President & CEO
We’re so excited to bring you the first issue of TSC Matters, our new bimonthl...
Read More: April Note from the President & CEOResearcher Seeking Donation of Tissue Samples from Your Surgery (Valid through June 2020)
Dr. Elizabeth (Lisa) Henske’s laboratory has a new project to develop cellular...
Read More: Researcher Seeking Donation of Tissue Samples from Your Surgery (Valid through June 2020)Dr. David Kwiatkowski at the Brigham & Women’s Hospital in Boston Seeks Biospecimens for LAM/TSC Research
His research involves analyzing left over fluid and tissue samples from chest an...
Read More: Dr. David Kwiatkowski at the Brigham & Women’s Hospital in Boston Seeks Biospecimens for LAM/TSC ResearchJASPER Early Intervention for Tuberous Sclerosis (Valid through September 2021) – Modified to Include Video-Based Intervention
Researchers from Boston and Los Angeles are studying the benefits of early behav...
Read More: JASPER Early Intervention for Tuberous Sclerosis (Valid through September 2021) – Modified to Include Video-Based InterventionSPARK for Autism Research Study, Boston Children’s Hospital (Valid through March 2020)
Boston Children’s Hospital would like to invite individuals of all ages diagno...
Read More: SPARK for Autism Research Study, Boston Children’s Hospital (Valid through March 2020)Clinical Trial for Individuals Diagnosed with Tuberous Sclerosis Complex (TSC) and Cutaneous Angiofibromas (Valid through June 2019)
We are currently conducting a clinical trial for individuals diagnosed with TSC ...
Read More: Clinical Trial for Individuals Diagnosed with Tuberous Sclerosis Complex (TSC) and Cutaneous Angiofibromas (Valid through June 2019)Phenotypic Variability in Tuberous Sclerosis Complex (TSC) (Study Valid through September 1, 2021)
Dr. Narayanan and colleagues at the Translational Genomics Research Institute (T...
Read More: Phenotypic Variability in Tuberous Sclerosis Complex (TSC) (Study Valid through September 1, 2021)