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TSC Matters

Recent Posts

International TAND Research Project Awarded Funding

Congratulations to Drs. Petrus de Vries (University of Cape Town) and Anna Jansen (UZ Brussel – Vrije Universiteit Brussel) on being awarded funding from the Tuberous Sclerosis Association and the

Read More: International TAND Research Project Awarded Funding

April Note from the President & CEO

We’re so excited to bring you the first issue of TSC Matters, our new bimonthl...

Read More: April Note from the President & CEO

TAND Parent/Caregiver Survey: We Need Your Input!

As part of our TSC-Associated Neuropsychiatric Disorders (TAND) Initiative we...

Read More: TAND Parent/Caregiver Survey: We Need Your Input!

IEP Season is Approaching

If you need support in understanding your rights as a parent/caregiver of a chil...

Read More: IEP Season is Approaching

Congratulations Dr. Martina Bebin!

Congratulations to Dr. Martina Bebin, former TSC Alliance Board Member and TSC C...

Read More: Congratulations Dr. Martina Bebin!

#March4TSCresearch Update

Thanks to the incredible advocacy of our volunteers, over half of the House sign...

Read More: #March4TSCresearch Update

Comedy for a Cure 2019

On Sunday, April 7, 2019, the 18th Annual Comedy for a Cure® will be held at A...

Read More: Comedy for a Cure 2019

Bid Now in Our Exclusive Comedy for a Cure Silent Auction!

The TSC Alliance’s 18th Annual Comedy for a Cure happens this Sunday, April 7...

Read More: Bid Now in Our Exclusive Comedy for a Cure Silent Auction!

Boston Regional TSC & LAM Conference

The TSC Alliance and The LAM Foundation are co-hosting five Regional TSC ...

Read More: Boston Regional TSC & LAM Conference

Upcoming Step Forward to Cure TSC Walks

“And that is how change happens. One gesture. One person. One moment at a time...

Read More: Upcoming Step Forward to Cure TSC Walks

Upcoming Adult Topic Calls

Are you an independent or semi-independent adult with TSC? If so, please join us...

Read More: Upcoming Adult Topic Calls

TSC Preclinical Consortium Meeting

The TSC Alliance launched the TSC Preclinical Consortium in 2016, in collabora...

Read More: TSC Preclinical Consortium Meeting

Clinical Trial for Individuals Diagnosed with Tuberous Sclerosis Complex (TSC) and Cutaneous Angiofibromas (Valid through June 2019)

We are currently conducting a clinical trial for individuals diagnosed with TSC ...

Read More: Clinical Trial for Individuals Diagnosed with Tuberous Sclerosis Complex (TSC) and Cutaneous Angiofibromas (Valid through June 2019)

SPARK for Autism Research Study, Boston Children’s Hospital (Valid through March 2020)

Boston Children’s Hospital would like to invite individuals of all ages diagno...

Read More: SPARK for Autism Research Study, Boston Children’s Hospital (Valid through March 2020)

Researcher Seeking Donation of Tissue Samples from Your Surgery (Valid through June 2020)

Dr. Elizabeth (Lisa) Henske’s laboratory has a new project to develop cellular...

Read More: Researcher Seeking Donation of Tissue Samples from Your Surgery (Valid through June 2020)

Phenotypic Variability in Tuberous Sclerosis Complex (TSC) (Study Valid through September 1, 2021)

Dr. Narayanan and colleagues at the Translational Genomics Research Institute (T...

Read More: Phenotypic Variability in Tuberous Sclerosis Complex (TSC) (Study Valid through September 1, 2021)

Dr. David Kwiatkowski at the Brigham & Women’s Hospital in Boston Seeks Biospecimens for LAM/TSC Research

His research involves analyzing left over fluid and tissue samples from chest an...

Read More: Dr. David Kwiatkowski at the Brigham & Women’s Hospital in Boston Seeks Biospecimens for LAM/TSC Research

2018 Volunteers of the Year

On Thursday, March 7, 2019 the TSC Alliance held its annual Volunteer Appreciati...

Read More: 2018 Volunteers of the Year

April Volunteer Opportunities Available

Champion Our Cause: Join the TSC Alliance Volunteer Movement “The smallest act...

Read More: April Volunteer Opportunities Available

45th Anniversary Flashback: The 1970s

Throughout 2019, the TSC Alliance will celebrate our sapphire, 45th anniversary....

Read More: 45th Anniversary Flashback: The 1970s
  • Topics
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    ▼
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    • Participate in research
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