December TSC Now Episode
In the December episode of TSC Now, a podcast by the TSC Alliance, Kelly Knupp, MD of the University of Colorado describes what infantile spasms (IS) are, why they are
Read More: December TSC Now EpisodeDecember Volunteer Opportunities Available
Champion Our Cause: Join the TSC Alliance Volunteer Movement “The smallest act...
Read More: December Volunteer Opportunities AvailableVolunteer Spotlight: Carly Kaye, Community Alliance Chair for Michigan
In addition to her role as Community Alliance Chair for Michigan, Carly Kaye is ...
Read More: Volunteer Spotlight: Carly Kaye, Community Alliance Chair for MichiganOngoing Genetic Study
See below for the ongoing study....
Read More: Ongoing Genetic StudyOngoing Biosample Studies
See below for ongoing studies....
Read More: Ongoing Biosample StudiesSave the Date for the 2021 Virtual March on Capitol Hill
If you are interested in participating in the Virtual March on Capitol Hill, ple...
Read More: Save the Date for the 2021 Virtual March on Capitol HillTuberous Sclerosis Complex Travel and Lodging Patient Assistance Program
NORD’s Tuberous Sclerosis Complex Travel and Lodging Patient Assistance Progra...
Read More: Tuberous Sclerosis Complex Travel and Lodging Patient Assistance ProgramCurrently Recruiting Sibling Participants
Do you have a brother or sister with autism? Share your voice. Spread more aware...
Read More: Currently Recruiting Sibling ParticipantsGlobal clinical study evaluating topical rapamycin treatment for facial angiofibroma in patients with tuberous sclerosis complex
This study of a new cream for the treatment of mild to moderate facial angiofibr...
Read More: Global clinical study evaluating topical rapamycin treatment for facial angiofibroma in patients with tuberous sclerosis complexMeet Some of the TSC Alliance Research Grant Recipients
New research grants awarded by the TSC Alliance in 2020:...
Read More: Meet Some of the TSC Alliance Research Grant RecipientsRe-Watch All of the Virtual TSC & LAM Conference Sessions
Did you miss our three virtual conferences earlier this year? Catch up on all th...
Read More: Re-Watch All of the Virtual TSC & LAM Conference SessionsJoin Our Future Leaders for a Young Adults with TSC Webinar
Are you a Young Adult with TSC (age 17-25)? Then join us next week for a webinar...
Read More: Join Our Future Leaders for a Young Adults with TSC WebinarJoin Us for Baking for a TSC Cure
Saturday, December 12, 2020 • 6:00 pm ET Chef Rivera, Head Pastry Chef at Bac...
Read More: Join Us for Baking for a TSC CureWelcome from Nobelpharma America!
Nobelpharma America is the first global subsidiary of Nobelpharma Co. Ltd (“No...
Read More: Welcome from Nobelpharma America!TSC Clinic Experience of Care Survey
The TSC Alliance would like to know about your experience at the TSC Clinic you/...
Read More: TSC Clinic Experience of Care SurveyHave You or Your Loved One with TSC Been Diagnosed with COVID-19?
The TSC Alliance is reaching out to individuals with TSC who had COVID-19 infect...
Read More: Have You or Your Loved One with TSC Been Diagnosed with COVID-19?December Note from the CEO
In the last edition of TSC Matters back in October, I refle...
Read More: December Note from the CEO