SPARK for Autism Research Study, Boston Children’s Hospital
Boston Children’s Hospital would like to invite individuals of all ages diagnosed with autism as well as their family members to join SPARK! SPARK, sponsored by the Simons Foundation Autism Research Initiative, has the mission of speeding up research and advancing understanding of autism by building the nation’s largest autism study. Registration can be found online
Read More: SPARK for Autism Research Study, Boston Children’s Hospital45th Anniversary Flashback: The 2000s
Throughout 2019, the TSC Alliance will celebrate our sapphire, 45th anniversary....
Read More: 45th Anniversary Flashback: The 2000sMeet Team TSC
On Sunday, November 3, 2019, 11 members of Team TSC will be running in the 2019...
Read More: Meet Team TSCAre you an adult with TSC or a caregiver of an adult with TSC?
Dr. Agnies Van Eeghen and her research team at Erasmus Medical Centre in The Net...
Read More: Are you an adult with TSC or a caregiver of an adult with TSC?Baby Brain Imaging and Behavior Study (Baby BIBS)
Researchers at the UCLA Center for Autism Research and Treatment (CART) are look...
Read More: Baby Brain Imaging and Behavior Study (Baby BIBS)Dr. David Kwiatkowski at the Brigham & Women’s Hospital in Boston Seeks Biospecimens for LAM/TSC Research
His research involves analyzing left over fluid and tissue samples from chest an...
Read More: Dr. David Kwiatkowski at the Brigham & Women’s Hospital in Boston Seeks Biospecimens for LAM/TSC ResearchResearcher Seeking Donation of Tissue Samples from Your Surgery
Dr. Elizabeth (Lisa) Henske’s laboratory has a new project to develop cellular...
Read More: Researcher Seeking Donation of Tissue Samples from Your SurgeryDose-Ranging Efficacy and Safety Study of Topical Rapamycin Cream for Facial Angiofibroma Associated with Tuberous Sclerosis Complex (TSC
A new clinical trial for individuals with TSC and facial angiofibromas who are 6...
Read More: Dose-Ranging Efficacy and Safety Study of Topical Rapamycin Cream for Facial Angiofibroma Associated with Tuberous Sclerosis Complex (TSCTuberous Sclerosis Research Opportunity – Please Help Us Better Understand Factors That Impact the Decision to Undergo Epilepsy Surgery
We have a brief survey (20 minutes) addressing caregiver satisfaction with epile...
Read More: Tuberous Sclerosis Research Opportunity – Please Help Us Better Understand Factors That Impact the Decision to Undergo Epilepsy SurgeryEfficacy and Safety of Lacosamide as Adjunctive Therapy in Subjects ≥1 Month to <4 Years with Partial-onset Seizures
Description: UCB Biosciences, Inc. is conducting a clinical trial to evaluate th...
Read More: Efficacy and Safety of Lacosamide as Adjunctive Therapy in Subjects ≥1 Month to <4 Years with Partial-onset SeizuresEngage Therapeutics Clinical Trial
Engage Therapeutics is a small biotech company working to improve life with epil...
Read More: Engage Therapeutics Clinical TrialTuberous Sclerosis Complex Travel and Lodging Patient Assistance Program
NORD’s Tuberous Sclerosis Complex Travel and Lodging Patient Assistance Progra...
Read More: Tuberous Sclerosis Complex Travel and Lodging Patient Assistance ProgramUpdate on State Funding in Maryland and Missouri
The Missouri State Legislature appropriated $250,000 in the state’s 2020 b...
Read More: Update on State Funding in Maryland and MissouriUpcoming Community Events
TSC Family Fun Day at Pullen Park Sunday, October 20, 2019 Pullen Park; Carouse...
Read More: Upcoming Community EventsJoin Us for a Free Webinar on SUDEP
Sudden Unexpected Death in Epilepsy (SUDEP) Presented by Douglas Smith, MD Minne...
Read More: Join Us for a Free Webinar on SUDEPTSC Clinic Experience of Care Survey
The TSC Alliance would like to know about your experience at the TSC Clinic you/...
Read More: TSC Clinic Experience of Care SurveyPhenotypic Variability in Tuberous Sclerosis Complex (TSC)
Dr. Narayanan and colleagues at the Translational Genomics Research Institute (T...
Read More: Phenotypic Variability in Tuberous Sclerosis Complex (TSC)Clinical Trial for Individuals Diagnosed with Tuberous Sclerosis Complex (TSC) and Cutaneous Angiofibromas
We are currently conducting a clinical trial for individuals diagnosed with TSC ...
Read More: Clinical Trial for Individuals Diagnosed with Tuberous Sclerosis Complex (TSC) and Cutaneous AngiofibromasPreventing Epilepsy Using Vigabatrin in Infants with Tuberous Sclerosis Complex (PREVeNT Trial)
Enrollment still open! Where: TSC Clinical Research Consortium sites at Boston C...
Read More: Preventing Epilepsy Using Vigabatrin in Infants with Tuberous Sclerosis Complex (PREVeNT Trial)October Volunteer Opportunities Available
Champion Our Cause: Join the TSC Alliance Volunteer Movement “The smallest act...
Read More: October Volunteer Opportunities AvailableGrant Opportunities for Families Impacted by Infantile Spasms
Our friends at the Child Neurology Foundation, in partnership with the Harnett ...
Read More: Grant Opportunities for Families Impacted by Infantile SpasmsTSC Alliance Announces New TSC Centers of Excellence
The TSC Alliance is pleased to introduce our new “TSC Center of Excellence” ...
Read More: TSC Alliance Announces New TSC Centers of ExcellenceJoin Us at the Regional TSC & LAM Conference in Los Angeles!
The fifth and final Regional TSC and LAM Conference, co-hosted with The LAM Foun...
Read More: Join Us at the Regional TSC & LAM Conference in Los Angeles!Upcoming Step Forward to Cure TSC Walks
Sometimes simple things can make a huge difference. Like simple steps, taken by ...
Read More: Upcoming Step Forward to Cure TSC WalksTSC Research: Our Vision for 2020
As part of our 45th Anniversary Celebration, during the Fund a Cure portion of t...
Read More: TSC Research: Our Vision for 2020Subscribe to TSC Now
TSC Now is the TSC Alliance’s podcast series, which features interviews wit...
Read More: Subscribe to TSC NowWhat TSC Means to Me Drawing Contest
In September, the TSC Alliance of Indiana held a “What Tuberous Sclerosis ...
Read More: What TSC Means to Me Drawing ContestUpcoming Adult Topic Calls
Are you an independent or semi-independent adult with TSC? If so, please join us...
Read More: Upcoming Adult Topic CallsOctober Note from the President & CEO
On Thursday, October 3 the TSC Alliance celebrated our 45th Anniversary Gala at ...
Read More: October Note from the President & CEO