TSC Matters

Archive for August, 2023

TSC Matters is a bimonthly e-newsletter featuring news from the TS Alliance, TSC research updates, upcoming TS Alliance events and more! Subscribe to stay up-to-date on everything happening at the TS Alliance.

TSC and Emotion Dysregulation Study for Children 8 to 18 years old and Their Caregivers

What A study to learn more about the effectiveness of a Tuberous Sclerosis Complex (TSC) treatment program called “Regulating Together.” This study will be primarily conducted remotely. There will be sessions to complete cognitive/behavioral testing, as well as five weeks of group session that will meet twice weekly for both children and parents/caregivers. This will last approximately 30 weeks from start to finish. (Please note that this is a research study and not treatment). Who Children 8 to 18 years old with TSC and emotion dysregulation One or two parents/caregivers who provide care to the participant Pay Participants will receive...Read More