TSC Matters

Archive for the ‘Volunteer Spotlight’ Topic

Thank You Future Leaders Class of 2020-2021

The six young adults in the Future Leaders Class of 2020-2021 greatly exceeded the requirements of the program and have been instrumental in moving it forward. Too often young adults with TSC feel alone with their disease, but they helped create a space for young adults with TSC to connect with each other and share resources.  Their class inspired the entire TSC community and continue to inspire all of us at the TSC Alliance. Read More

Congratulations to Our 2020 Volunteers of the Year!

On Friday, March 5 the TSC Alliance hosted our annual Volunteer Appreciating Celebration to pay tribute to the outstanding work of our incredible volunteers, who continue to work diligently around the year despite the challenges we all faced in 2020. This year, due to the ongoing COVID-19 pandemic the event was held virtually. Read More

Volunteer Spotlight: Carly Kaye, Community Alliance Chair for Michigan

In addition to her role as Community Alliance Chair for Michigan, Carly Kaye is a leader and innovator in the greater TSC community. Inspired by her son, Logan, Carly is determined to make a difference. After running her own business, she was inspired to start creating apparel and merchandise that would raise awareness for TSC. In 2018, the TSC Swag Store was born and made its debut at the World TSC Conference in Dallas, Texas. Today, Carly works with local engravers and embroiders to create unique and inspiring items and donates 30 percent of all proceeds to the TSC Alliance. Carly... Read More

Submit your Nominations for our 2019 Volunteer Awards!

The TSC Alliance will honor up to four individuals, one Community Alliance and one adult with TSC for their outstanding dedication and commitment to the organization during its annual Volunteer Appreciation Dinner on March 5, 2020. It gives us the opportunity to recognize those volunteers who stand out for making a significant impact in their local communities. Read More

Meet Team TSC

On Sunday, November 3, 2019, 11 members of Team TSC will be running in the 2019 TCS New York City Marathon on behalf of the TSC Alliance. To date, our Team TSC runners have raised over $50,000 this year to support TSC research and support services! Meet Team TSC and support their fundraisers today! Read More

2018 Volunteers of the Year

On Thursday, March 7, 2019 the TSC Alliance held its annual Volunteer Appreciation Dinner to honor our incredible volunteers across the country and celebrate 45 years of inspiration, innovation and hope. As part of the evening’s festivities we recognized four Volunteers of the Year (the “Franny Award”), a Keith Hall Distinguished Leadership Award winner and the Community Alliance of the Year (the “Dreamer Award”). Congratulations to all our Volunteers of the Year! Read More