August 2019 - TSC Alliance

Engage Therapeutics Clinical Trial

Engage Therapeutics is a small biotech company working to improve life with epilepsy. Toward this end, they are developing an inhaler rescue therapy that stops seizures in their tracks. If

2019 International TSC Research Conference Review

The 2019 International TSC Research Conference: Changing the Course of TSC, co...

Upcoming Adult Topic Calls

Are you an independent or semi-independent adult with TSC? If so, please join us...

Upcoming Community Events

Northern California Picnic Saturday, August 25, 2019, 11 AM – 2 PM Contact: L...

Become a Junior Leader!

We are looking for Junior Leaders for the 2019-2020 school year. The TSC Allianc...

Join the TSC Alliance at Our 45th Anniversary Gala in New York City

Early bird tickets available until September 9, 2019. Learn More Get Your Ticke...

Join Us at the Regional TSC & LAM Conference in Chicago!

The third Regional TSC and LAM Conference, co-hosted with The LAM Foundation, is...

TSC Clinic Experience of Care Survey

The TSC Alliance would like to know about your experience at the TSC Clinic you/...

Listen to TSC Now

TSC Now is the TSC Alliance’s podcast series, which features interviews wit...

Join Team TSC and Run the NYC Marathon!

There are still a few spots left to run with Team TSC in the 2019 TCS New York C...

45th Anniversary Flashback: The 1990s

Throughout 2019, the TSC Alliance will celebrate our sapphire, 45th anniversary....

Upcoming Step Forward to Cure TSC Walks

Sometimes simple things can make a huge difference. Like simple steps, taken by ...

August Note from the President & CEO

From July 22-26 TSC Alliance staff members from across the country came together...

August Volunteer Opportunities Available

Champion Our Cause: Join the TSC Alliance Volunteer Movement “The smallest act...

Phenotypic Variability in Tuberous Sclerosis Complex (TSC)

Dr. Narayanan and colleagues at the Translational Genomics Research Institute (T...

Baby Brain Imaging and Behavior Study (Baby BIBS)

Researchers at the UCLA Center for Autism Research and Treatment (CART) are look...

Tuberous Sclerosis Complex Travel and Lodging Patient Assistance Program

What is the purpose of this program? NORD’s Tuberous Sclerosis Complex Travel ...

JASPER Early intervention for Tuberous Sclerosis (Valid through September 2021) – Modified to Include Video-Based Intervention

Researchers from Boston and Los Angeles are studying the benefits of early behav...

Dose-Ranging Efficacy and Safety Study of Topical Rapamycin Cream for Facial Angiofibroma Associated with Tuberous Sclerosis Complex (TSC)

A new clinical trial for individuals with TSC and facial angiofibromas who are 6...

Clinical Trial for Individuals Diagnosed with Tuberous Sclerosis Complex (TSC) and Cutaneous Angiofibromas

We are currently conducting a clinical trial for individuals diagnosed with TSC ...

Preventing Epilepsy Using Vigabatrin in Infants with Tuberous Sclerosis Complex (PREVeNT Trial)

Enrollment goal might be reached by Sept 2019...