TSC Matters

Archive for the ‘Government Advocacy Updates’ Topic

#March4TSCresearch Update

The annual TSC Alliance March on Capitol Hill to advocate for federal funding for the Tuberous Sclerosis Complex Research Program (TSCRP) at the Department of Defense’s (DoD) Congressionally Directed Medical Research Program (CDMRP) took place in early March 2020. Total funding for the TSCRP has been $89 million since 2002. The FY20 appropriation was funded at $6 million. In FY21 we are requesting $8 million in funding for the TSCRP. More than 100 TSC advocates participated in this year’s March on Capitol Hill and visited 367 House and 94 Senator offices to talk with them about the importance of funding... Read More

#March4TSCresearch Update

On March 4, 2020 more than 120 volunteer advocates from across the country will gather in Washington, DC for the annual March on Capitol Hill to advocate for continued funding of the Tuberous Sclerosis Complex Research Program (TSCRP) at the Department of Defense. Want to get involved? Send us an email at grc@tscalliance.org to learn more. Read More

Update on State Funding in Maryland and Missouri

The Missouri State Legislature appropriated $250,000 in the state’s 2020 budget for the TSC Center of Missouri. In addition, $500,000 for the new TSC Center of Maryland was appropriated in Maryland Governor Larry Hogan’s 2020 budget and approved by the Maryland General Assembly with the support of Senator Brian Feldman and Delegate Nicholaus Kipke. Thank you to all those who made these appropirations possible, both were the result of incredible advocacy efforts in Missouri and Maryland. Read more about these appropriations in the latest Perspective Magazine  Read More

#March4TSCresearch Update

Thanks to the incredible advocacy of our volunteers, over half of the House signed the FY20 House Dear Colleague Letter! It closed with 232 signatures, making it our most signed House Dear Colleague Letter to date! The previous high was 200 for FY19 in 2018. You can see the final FY20 House Dear Colleague Letter here. Read More