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TSC Matters

Upcoming Events

Register today for the 2023 Regional TSC & LAM Conference Series

The TSC Alliance® and The LAM Foundation have joined together once again to co-host four Regional TSC & LAM Conferences in 2023 aimed at individuals with TSC and or LAM

Read More: Register today for the 2023 Regional TSC & LAM Conference Series

Watch our recent webinar on SUDEP

...

Read More: Watch our recent webinar on SUDEP

Join us for an upcoming Adult Topic Call

Are you an independent or semi-independent adult with TSC? If so, please join us...

Read More: Join us for an upcoming Adult Topic Call

Re-Watch All of the Virtual TSC & LAM Conference Sessions

Did you miss our three virtual conferences earlier this year? Catch up on all th...

Read More: Re-Watch All of the Virtual TSC & LAM Conference Sessions

Join Our Future Leaders for a Young Adults with TSC Webinar

Are you a Young Adult with TSC (age 17-25)? Then join us next week for a webinar...

Read More: Join Our Future Leaders for a Young Adults with TSC Webinar

Join Us for Baking for a TSC Cure

Saturday, December 12, 2020 • 6:00 pm ET Chef Rivera, Head Pastry Chef at Bac...

Read More: Join Us for Baking for a TSC Cure

Join Us For the Final Virtual TSC & LAM Conference on November 7!

The third and final Virtual TSC and LAM Conference on Saturday, November 7, 202...

Read More: Join Us For the Final Virtual TSC & LAM Conference on November 7!

Join Us for an Upcoming Adult Topic Call

Are you an independent or semi-independent adult with TSC? If so, please join us...

Read More: Join Us for an Upcoming Adult Topic Call

Upcoming Adult Topic Calls

Are you an independent or semi-independent adult with TSC? If so, please join us...

Read More: Upcoming Adult Topic Calls

Upcoming Community Events

Chicago Post-Holiday Party Sunday, January 12, 2020, 5 to 7:30 pm Alexian Brothe...

Read More: Upcoming Community Events

Join Us for a Free Webinar on TSC-Associated Neuropsychiatric Disorders (TAND)

TAND Webinar: Effective Behavioral Treatments Presented by Dr. Nathan Call...

Read More: Join Us for a Free Webinar on TSC-Associated Neuropsychiatric Disorders (TAND)

Upcoming Community Events

TSC Family Fun Day at Pullen Park Sunday, October 20, 2019 Pullen Park; Carouse...

Read More: Upcoming Community Events

Join Us for a Free Webinar on SUDEP

Sudden Unexpected Death in Epilepsy (SUDEP) Presented by Douglas Smith, MD Minne...

Read More: Join Us for a Free Webinar on SUDEP

Join Us at the Regional TSC & LAM Conference in Los Angeles!

The fifth and final Regional TSC and LAM Conference, co-hosted with The LAM Foun...

Read More: Join Us at the Regional TSC & LAM Conference in Los Angeles!

Upcoming Step Forward to Cure TSC Walks

Sometimes simple things can make a huge difference. Like simple steps, taken by ...

Read More: Upcoming Step Forward to Cure TSC Walks

Upcoming Adult Topic Calls

Are you an independent or semi-independent adult with TSC? If so, please join us...

Read More: Upcoming Adult Topic Calls

Upcoming Adult Topic Calls

Are you an independent or semi-independent adult with TSC? If so, please join us...

Read More: Upcoming Adult Topic Calls

Upcoming Community Events

Northern California Picnic Saturday, August 25, 2019, 11 AM – 2 PM Contact: L...

Read More: Upcoming Community Events

Join the TSC Alliance at Our 45th Anniversary Gala in New York City

Early bird tickets available until September 9, 2019. Learn More Get Your Ticke...

Read More: Join the TSC Alliance at Our 45th Anniversary Gala in New York City

Join Us at the Regional TSC & LAM Conference in Chicago!

The third Regional TSC and LAM Conference, co-hosted with The LAM Foundation, is...

Read More: Join Us at the Regional TSC & LAM Conference in Chicago!

Upcoming Step Forward to Cure TSC Walks

Sometimes simple things can make a huge difference. Like simple steps, taken by ...

Read More: Upcoming Step Forward to Cure TSC Walks

Get Your Tickets Now to Our 45th Anniversary Celebration in NYC

On Thursday, October 3, 2019, the Tuberous Sclerosis Alliance (TS Allianc...

Read More: Get Your Tickets Now to Our 45th Anniversary Celebration in NYC

Upcoming Community Events

Upper Midwest Picnic (Minneapolis, MN) Sunday, June 23, 2019, 11 AM Contact: Al...

Read More: Upcoming Community Events

Upcoming Step Forward to Cure TSC Walks

Sometimes simple things can make a huge difference. Like simple steps, taken by ...

Read More: Upcoming Step Forward to Cure TSC Walks

St. Louis Regional TSC & LAM Conference

The TSC Alliance and The LAM Foundation are co-hosting four more Regional T...

Read More: St. Louis Regional TSC & LAM Conference

Comedy for a Cure 2019

On Sunday, April 7, 2019, the 18th Annual Comedy for a Cure® will be held at A...

Read More: Comedy for a Cure 2019

Bid Now in Our Exclusive Comedy for a Cure Silent Auction!

The TSC Alliance’s 18th Annual Comedy for a Cure happens this Sunday, April 7...

Read More: Bid Now in Our Exclusive Comedy for a Cure Silent Auction!

Boston Regional TSC & LAM Conference

The TSC Alliance and The LAM Foundation are co-hosting five Regional TSC ...

Read More: Boston Regional TSC & LAM Conference

Upcoming Step Forward to Cure TSC Walks

“And that is how change happens. One gesture. One person. One moment at a time...

Read More: Upcoming Step Forward to Cure TSC Walks

Upcoming Adult Topic Calls

Are you an independent or semi-independent adult with TSC? If so, please join us...

Read More: Upcoming Adult Topic Calls
  • Topics
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  • Home
  • Understanding TSC
    ▼
    • What is TSC?
    • Genetics
    • Clinical Manifestations
    • Prognosis
    • Diagnostic criteria
    • Surveillance & treatment
  • Navigating TSC
    ▼
    • Prenatal diagnosis
    • Childhood diagnosis
    • Adult diagnosis
    • Coordination of care
    • Caregiver resources
    • Mental health
    • Surveillance & management
    • Medication access issues
    • Medication resources
    • Pharmacy Resources
  • TAND
    ▼
    • TAND Overview
    • Autism in TSC
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    • Eating and sleep difficulties in TSC
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    • Overactivity and impulsivity in TSC
    • Scholastic difficulties in TSC
    • Psychosocial issues in TSC
  • Stories of hope
  • Find Support
    ▼
    • Find a TSC Clinic
    • Bcureful travel & lodging assistance
    • Educational support
    • Community support network
    • Connect with a Support Navigator
  • Resources
  • Get Involved
    ▼
    • Volunteer
    • Community Leadership Hub
    • Participate in research
    • Anya’s Accelerator
    • TSC Biosample Repository & Natural History Database
    • Seizures and TSC: your data matters!
    • TSC clinical trials
    • Government advocacy
    • TSC Matters E-Newsletter
    • Become a member
    • Join Team TSC
    • Ways to give
  • News
  • Events
  • Donate
  • About Us
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    • Careers
  • Healthcare Providers
  • Researchers
    ▼
    • Research Strategy
    • Grants & funding
    • Preclinical research
    • Natural History Database
    • Biosample Repository
    • Clinical Research Consortium
    • TSC Alert
    • Research conferences
    • Manuel R. Gomez Award
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