TSC Matters is a bimonthly e-newsletter featuring news from the TS Alliance, TSC research updates, upcoming TS Alliance events and more! Subscribe to stay up-to-date on everything happening at the TS Alliance.
April Volunteer Opportunities Available
Champion Our Cause: Join the TSC Alliance Volunteer Movement “The smallest act of kindness is worth more than than the grandest intention.” – Oscar Wilde The TSC Alliance thrives on the service of selfless individuals across the country who give of their time, talent, and resources to help us achieve our mission to find a cure for TSC and improve the lives of those affected. Without them, we would not be where we are today.Read More
Tuberous Sclerosis Research Opportunity
Please help us better understand factors that impact the decision to undergo epilepsy surgery.Read More
Behavioral Research – Open to families with children with and without TSC
Tell us about your child’s emotional outburstsRead More
Phenotypic Variability in Tuberous Sclerosis Complex (TSC)
Dr. Narayanan and colleagues at the Translational Genomics Research Institute (TGen) in Phoenix, Arizona are conducting a research study aimed at identifying genetic modifiers of disease severity in TSC. Read More
Ongoing Early Intervention and Autism Trials
See below for ongoing trials.Read More
Ongoing Biosample Studies
See below for ongoing studies.Read More
Ongoing Facial Angiofibroma Trials
See below for ongoing trials.Read More
Listen and Subscribe to TSC Now
TSC Now is the TSC Alliance’s podcast series, which features interviews with clinicians, researchers, TSC Alliance staff and others on topics like TSC research, epilepsy surgery options, educational advocacy, TSC-associated Neuropsychiatric Disorders (TAND), seizure control and more. Haven’t listened yet? Check out the latest episode.You can subscribe to TSC Now on Spotify, TuneIn, Stitcher, Apple Podcasts, Google Podcasts or wherever you listen to podcasts. Listen and SubscribeRead More
#March4TSCresearch Update
The annual TSC Alliance March on Capitol Hill to advocate for federal funding for the Tuberous Sclerosis Complex Research Program (TSCRP) at the Department of Defense’s (DoD) Congressionally Directed Medical Research Program (CDMRP) took place in early March 2020. Total funding for the TSCRP has been $89 million since 2002. The FY20 appropriation was funded at $6 million. In FY21 we are requesting $8 million in funding for the TSCRP. More than 100 TSC advocates participated in this year’s March on Capitol Hill and visited 367 House and 94 Senator offices to talk with them about the importance of funding...Read More
Moving TSC Research Forward in the Face of COVID-19
On Monday, April 6, TSC Alliance staff members from our science department presented on how we are continuing to advance critical TSC research during the COVID-19 pandemic.Read More