April Volunteer Opportunities Available
Champion Our Cause: Join the TSC Alliance Volunteer Movement “The smallest act of kindness is worth more than than the grandest intention.” – Oscar Wilde The TSC Alliance thrives on the service of selfless individuals across the country who give of their time, talent, and resources to help us achieve our mission to find a cure
Read More: April Volunteer Opportunities AvailableTuberous Sclerosis Research Opportunity
Please help us better understand factors that impact the decision to undergo epi...
Read More: Tuberous Sclerosis Research OpportunityBehavioral Research – Open to families with children with and without TSC
Tell us about your child’s emotional outbursts...
Read More: Behavioral Research – Open to families with children with and without TSCPhenotypic Variability in Tuberous Sclerosis Complex (TSC)
Dr. Narayanan and colleagues at the Translational Genomics Research Institute (T...
Read More: Phenotypic Variability in Tuberous Sclerosis Complex (TSC)Ongoing Biosample Studies
See below for ongoing studies....
Read More: Ongoing Biosample StudiesOngoing Facial Angiofibroma Trials
See below for ongoing trials....
Read More: Ongoing Facial Angiofibroma TrialsListen and Subscribe to TSC Now
TSC Now is the TSC Alliance’s podcast series, which features interviews wit...
Read More: Listen and Subscribe to TSC Now#March4TSCresearch Update
The annual TSC Alliance March on Capitol Hill to advocate for federal funding fo...
Read More: #March4TSCresearch UpdateMoving TSC Research Forward in the Face of COVID-19
On Monday, April 6, TSC Alliance staff members from our science department prese...
Read More: Moving TSC Research Forward in the Face of COVID-19TSC Clinic Experience of Care Survey
The TSC Alliance would like to know about your experience at the TSC Clinic you/...
Read More: TSC Clinic Experience of Care SurveyUpdate on TSC Biosample Repository and Natural History Database Project
Although collections are paused due to COVID-19 concerns, the TSC Alliance is ab...
Read More: Update on TSC Biosample Repository and Natural History Database ProjectTSC Alliance COVID-19 & TSC Resource
The TSC Alliance has assembled a wide range of information and resources about t...
Read More: TSC Alliance COVID-19 & TSC ResourceApril Note from the President & CEO
It is crazy to think that six short weeks ago we were wrapp...
Read More: April Note from the President & CEO