TSC Matters

Archive for April, 2020

TSC Matters is a bimonthly e-newsletter featuring news from the TS Alliance, TSC research updates, upcoming TS Alliance events and more! Subscribe to stay up-to-date on everything happening at the TS Alliance.

April Volunteer Opportunities Available

Champion Our Cause: Join the TSC Alliance Volunteer Movement “The smallest act of kindness is worth more than than the grandest intention.”  – Oscar Wilde The TSC Alliance thrives on the service of selfless individuals across the country who give of their time, talent, and resources to help us achieve our mission to find a cure for TSC and improve the lives of those affected. Without them, we would not be where we are today.Read More

Listen and Subscribe to TSC Now

TSC Now is the TSC Alliance’s podcast series, which features interviews with clinicians, researchers, TSC Alliance staff and others on topics like TSC research, epilepsy surgery options, educational advocacy, TSC-associated Neuropsychiatric Disorders (TAND), seizure control and more. Haven’t listened yet? Check out the latest episode.You can subscribe to TSC Now on Spotify, TuneIn, Stitcher, Apple Podcasts, Google Podcasts or wherever you listen to podcasts. Listen and SubscribeRead More

#March4TSCresearch Update

The annual TSC Alliance March on Capitol Hill to advocate for federal funding for the Tuberous Sclerosis Complex Research Program (TSCRP) at the Department of Defense’s (DoD) Congressionally Directed Medical Research Program (CDMRP) took place in early March 2020. Total funding for the TSCRP has been $89 million since 2002. The FY20 appropriation was funded at $6 million. In FY21 we are requesting $8 million in funding for the TSCRP. More than 100 TSC advocates participated in this year’s March on Capitol Hill and visited 367 House and 94 Senator offices to talk with them about the importance of funding...Read More