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TSC Matters

Recent Posts

April Volunteer Opportunities Available

Champion Our Cause: Join the TSC Alliance Volunteer Movement “The smallest act of kindness is worth more than than the grandest intention.”  – Oscar Wilde The TSC Alliance thrives on the

Read More: April Volunteer Opportunities Available

Tuberous Sclerosis Research Opportunity

Please help us better understand factors that impact the decision to undergo epi...

Read More: Tuberous Sclerosis Research Opportunity

Behavioral Research – Open to families with children with and without TSC

Tell us about your child’s emotional outbursts...

Read More: Behavioral Research – Open to families with children with and without TSC

Phenotypic Variability in Tuberous Sclerosis Complex (TSC)

Dr. Narayanan and colleagues at the Translational Genomics Research Institute (T...

Read More: Phenotypic Variability in Tuberous Sclerosis Complex (TSC)

Ongoing Biosample Studies

See below for ongoing studies....

Read More: Ongoing Biosample Studies

Ongoing Facial Angiofibroma Trials

See below for ongoing trials....

Read More: Ongoing Facial Angiofibroma Trials

Listen and Subscribe to TSC Now

TSC Now is the TSC Alliance’s podcast series, which features interviews wit...

Read More: Listen and Subscribe to TSC Now

#March4TSCresearch Update

The annual TSC Alliance March on Capitol Hill to advocate for federal funding fo...

Read More: #March4TSCresearch Update

Moving TSC Research Forward in the Face of COVID-19

On Monday, April 6, TSC Alliance staff members from our science department prese...

Read More: Moving TSC Research Forward in the Face of COVID-19

TSC Clinic Experience of Care Survey

The TSC Alliance would like to know about your experience at the TSC Clinic you/...

Read More: TSC Clinic Experience of Care Survey

Update on TSC Biosample Repository and Natural History Database Project

Although collections are paused due to COVID-19 concerns, the TSC Alliance is ab...

Read More: Update on TSC Biosample Repository and Natural History Database Project

TSC Alliance COVID-19 & TSC Resource

The TSC Alliance has assembled a wide range of information and resources about t...

Read More: TSC Alliance COVID-19 & TSC Resource

April Note from the President & CEO

      It is crazy to think that six short weeks ago we were wrapp...

Read More: April Note from the President & CEO
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  • Home
  • Understanding TSC
    ▼
    • What is TSC?
    • Genetics
    • Clinical Manifestations
    • Prognosis
    • Diagnostic criteria
    • Surveillance & treatment
  • Navigating TSC
    ▼
    • Prenatal diagnosis
    • Childhood diagnosis
    • Adult diagnosis
    • Coordination of care
    • Caregiver resources
    • Mental health
    • Surveillance & management
    • Medication access issues
    • Medication resources
    • Pharmacy Resources
  • TAND
    ▼
    • TAND Overview
    • Autism in TSC
    • Dysregulated behaviors
    • Eating and sleep difficulties in TSC
    • Mood and anxiety difficulties in TSC
    • Neuropsychological issues in TSC
    • Overactivity and impulsivity in TSC
    • Scholastic difficulties in TSC
    • Psychosocial issues in TSC
  • Stories of hope
  • Find Support
    ▼
    • Find a TSC Clinic
    • Bcureful travel & lodging assistance
    • Educational support
    • Community support network
    • Connect with a Support Navigator
  • Resources
  • Get Involved
    ▼
    • Volunteer
    • Community Leadership Hub
    • Participate in research
    • Anya’s Accelerator
    • TSC Biosample Repository & Natural History Database
    • Seizures and TSC: your data matters!
    • TSC clinical trials
    • Government advocacy
    • TSC Matters E-Newsletter
    • Become a member
    • Join Team TSC
    • Ways to give
  • News
  • Events
  • Donate
  • About Us
    ▼
    • About the TSC Alliance
    • Our Vision
    • Our Team
    • Our Leadership
    • Our Results
    • Corporate Policies
    • FAQs
    • Careers
  • Healthcare Providers
  • Researchers
    ▼
    • Research Strategy
    • Grants & funding
    • Preclinical research
    • Natural History Database
    • Biosample Repository
    • Clinical Research Consortium
    • TSC Alert
    • Research conferences
    • Manuel R. Gomez Award
  • En Español
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