TSC Matters is a bimonthly e-newsletter featuring news from the TS Alliance, TSC research updates, upcoming TS Alliance events and more! Subscribe to stay up-to-date on everything happening at the TS Alliance.
Ongoing Early Intervention and Autism Trials
See below for ongoing trials.Read More
Ongoing Biosample Studies
See below for ongoing studies.Read More
Ongoing Epilepsy Trial
See below for the upcoming trial.Read More
Have You or Your Loved One with TSC Been Diagnosed with COVID-19?
The TSC Alliance seeks to contact individuals with TSC who had COVID-19 infection to collect information in the TSC Natural History Database. TSC researchers will be using this information to help determine how medications such as everolimus (Afinitor®, Zortress®) or sirolimus (Rapamune®) and TSC conditions affect the risk of getting COVID-19 and its severity.Read More
Message from the CEO – April 2022
TSC Alliance® President and CEO Kari Luther Rosbeck, along with Director of Community Education & Resources Shelly Meitzler, Vice President of Community Programs April Cooper, and World TSC Conference Chair Mary Roberds, join us from the Hilton Anatole in Dallas, Texas, site of the 2022 World TSC Conference, with important updates, including: Registration is open for the World TSC Conference on July 28-31, 2022 and early bird pricing ends June 1! Learn more and register today. The Step Forward to Cure TSC® Global Hybrid Walk Run-Ride will be May 14-15, 2022! You can participate virtually or join us at three...Read More