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TSC Matters

Note from the President & CEO

April 2023 Message from the CEO

TSC Alliance President & CEO Kari Luther Rosbeck announces registration opening for the 2023 Regional TSC & LAM Conference Series co-hosted with The LAM Foundation, encourages everyone to participate in

Read More: April 2023 Message from the CEO

Message from the CEO – April 2022

TSC Alliance® President and CEO Kari Luther Rosbeck, along with Director of Com...

Read More: Message from the CEO – April 2022

April 2021 Note from the President & CEO

TSC Alliance President and CEO Kari Luther Rosbeck provides organizational updat...

Read More: April 2021 Note from the President & CEO

February Note from the CEO

...

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December Note from the CEO

      In the last edition of TSC Matters back in October, I refle...

Read More: December Note from the CEO

October Note from the CEO

      This year has challenged us to come up with new ways to bri...

Read More: October Note from the CEO

April Note from the President & CEO

      It is crazy to think that six short weeks ago we were wrapp...

Read More: April Note from the President & CEO

February Note from the President and CEO

      Following what was a truly inspiring 45th anniversary year,...

Read More: February Note from the President and CEO

December Note from the President & CEO

As I reflect on 2019 one theme that runs through most of what we accomplished is...

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October Note from the President & CEO

On Thursday, October 3 the TSC Alliance celebrated our 45th Anniversary Gala at ...

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August Note from the President & CEO

From July 22-26 TSC Alliance staff members from across the country came together...

Read More: August Note from the President & CEO

June Note from the President & CEO

On May 15, the TSC Alliance joined TSC International (TSCi) to observe the seven...

Read More: June Note from the President & CEO

April Note from the President & CEO

We’re so excited to bring you the first issue of TSC Matters, our new bimonthl...

Read More: April Note from the President & CEO
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  • Home
  • Understanding TSC
    ▼
    • What is TSC?
    • Genetics
    • Clinical Manifestations
    • Prognosis
    • Diagnostic criteria
    • Surveillance & treatment
  • Navigating TSC
    ▼
    • Prenatal diagnosis
    • Childhood diagnosis
    • Adult diagnosis
    • Coordination of care
    • Caregiver resources
    • Mental health
    • Surveillance & management
    • Medication access issues
    • Medication resources
    • Pharmacy Resources
  • TAND
    ▼
    • TAND Overview
    • Autism in TSC
    • Dysregulated behaviors
    • Eating and sleep difficulties in TSC
    • Mood and anxiety difficulties in TSC
    • Neuropsychological issues in TSC
    • Overactivity and impulsivity in TSC
    • Scholastic difficulties in TSC
    • Psychosocial issues in TSC
  • Stories of hope
  • Find Support
    ▼
    • Find a TSC Clinic
    • Bcureful travel & lodging assistance
    • Educational support
    • Community support network
    • Connect with a Support Navigator
  • Resources
  • Get Involved
    ▼
    • Volunteer
    • Community Leadership Hub
    • Participate in research
    • Anya’s Accelerator
    • TSC Biosample Repository & Natural History Database
    • Seizures and TSC: your data matters!
    • TSC clinical trials
    • Government advocacy
    • TSC Matters E-Newsletter
    • Become a member
    • Join Team TSC
    • Ways to give
  • News
  • Events
  • Donate
  • About Us
    ▼
    • About the TSC Alliance
    • Our Vision
    • Our Team
    • Our Leadership
    • Our Results
    • Corporate Policies
    • FAQs
    • Careers
  • Healthcare Providers
  • Researchers
    ▼
    • Research Strategy
    • Grants & funding
    • Preclinical research
    • Natural History Database
    • Biosample Repository
    • Clinical Research Consortium
    • TSC Alert
    • Research conferences
    • Manuel R. Gomez Award
  • En Español
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