Champion Our Cause: Join the TSC Alliance Volunteer Movement

The smallest act of kindness is worth more than than the grandest intention.”  – Oscar Wilde

The TSC Alliance thrives on the service of selfless individuals across the country who give of their time, talent, and resources to help us achieve our mission to find a cure for TSC and improve the lives of those affected. Without them, we would not be where we are today. They have propelled our organization to levels once thought impossible — from the original four volunteer mothers who started the organization in 1974 to nearly 3,000 individuals championing our cause each year today!

The TSC Alliance is seeking volunteers to serve as champions for our cause. We need your help to facilitate local connections for those affected by TSC, raise revenue and increase awareness while supporting the mission of our organization. There are numerous ways to participate as a volunteer at the TSC Alliance with a position to fit anyone who is interested in being a part of our team. You can check out all of our volunteer positions here.

See below for current openings.

Community Alliance Chair

The responsibilities of the Community Alliance Chair are as follows:

  • Provide one-on-one support to those who contact the TSC Alliance seeking a connection in the local area
  • Organize social activities like picnics, holiday parties, support groups and educational sessions with featured speakers
  • Serve as the point of contact for individuals and families seeking more information on local services, professional services and TSC Alliance programs
  • Attend the annual March on Capitol Hill and leadership training event in Washington, DC and/or participate in government relations effort

Current Openings:

  • TSC Alliance of the Heartland
  • TSC Alliance of New England
  • TSC Alliance of Tennessee
  • TSC Alliance of Houston

Time Requirements:

Approximately 30-40 hours annually in the support functions plus the annual March on Capitol Hill in Washington, DC from Tuesday to Thursday in the first week of March with approximately 5-10 hours leading up to the event and 5-10 hours following for the March on Capitol Hill and Leadership Training.

Skill Set Required:

Willingness and ability to communicate with local families, communication skills, planning, organization, interest in government advocacy

Apply online for an open Community Alliance Chair position.

Education Parent Mentors

Does your child or has your child been on an IEP in the school system? Then you have the experience to become an Education Parent Mentor (EPM).

The TSC Alliance is looking for Education Parent Mentors (EPM) for: AZ, AR, CO, CT, DE, FL, ID, IN, ME, MD, MS, MN, MT, NH, NJ, NM, OK, OR, RI, SC, SD, WA, WY

An Education Parent Mentor  is trained in educational rights in the Individuals with Disabilities Education Act (IDEA) and the Rehabilitation Act of 1973 Section 504. They are to support and educate parents/caregivers in becoming better educational advocates for their child. They can attend a school meeting (In Person, SKYPE, Go to Meetings, Facetime, or Conference Call) to give support to both the parent and school district.  They can provide TSC 101 Training for the school system and provide TSC Alliance support resources.

Apply online to be an Education Parent Mentor.

Educator Mentor

The TSC Alliance is looking for Educator Mentors in all 50 states in all of the below positions.

The Educator Mentor Program (EMP) was developed to support school systems in understanding the learning needs of children with TSC. The EMP is made up of administrators, therapists (speech, occupational and physical), behavior intervention specialists, ABA instructors, physiologists, and teachers from pre-kindergarten to college level having experience with TSC.  They provide one-on-one support (SKYPE, e-mail, facetime, text, conference calls) to any professional in the school system needing education and support in understanding the educational complexities of TSC.

Apply online to be an Educator Mentor

Dependent Adult Transition Resource Coordinator

Do you have a Dependent Adult Child?

The TSC Alliance is looking for a Dependent Adult Transition Resource Coordinator (DATRC) for: AL, DE, ID, IN, IA, ME, MD, MS, MT, NC, NE, NH, NJ, NM, NY, OK, RI, SC, SD, UT, VT, WY

A Dependent Adult Transition Resource Coordinator is knowledgeable in state resources, events, support meetings, conferences, and any new research on TSC that pertains to dependent adults and transitioning young adults with TSC and their caregiver.  They provide one on one support to parents/caregivers to maneuver their state’s resource systems.

Learn more about the Dependent Adult Transition Resource Coordinator position.

Volunteers are also needed to serve is various roles across the country. Apply for any of our leadership positions here.