TSC Matters

#March4TSCresearch Update

We are excited to report over a third of the Senate signed the FY20 Dear Colleague Letter, and it closed with a record 35 signatures! The previous high was 29. The final letter can be found here.

Combined with the 232 signatures on the FY20 House Dear Colleague Letter, it has been a historic year for support on the TSCRP Dear Colleague Letters! This is a tremendous accomplishment, due to your passionate and dedicated advocacy for the Tuberous Sclerosis Complex Research Program. It wouldn’t have been possible without the countless numbers of hours spent collecting letters, visiting offices, making phones calls and sending emails. Thank you advocates for sharing your stories and for all the visits, letters, phone calls and emails to your members of Congress! Achieving a record number of signers in both the House and Senate is an amazing accomplishment!