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TSC Matters

#March4TSCresearch Update

The annual TSC Alliance March on Capitol Hill to advocate for federal funding for the Tuberous Sclerosis Complex Research Program (TSCRP) at the Department of Defense’s (DoD) Congressionally Directed Medical Research Program (CDMRP) took place in early March 2020. Total funding for the TSCRP has been $89 million since 2002. The FY20 appropriation was funded at $6 million. In FY21 we are requesting $8 million in funding for the TSCRP.

More than 100 TSC advocates participated in this year’s March on Capitol Hill and visited 367 House and 94 Senator offices to talk with them about the importance of funding for the TSCRP. The FY21 House Dear Colleague Letter was co-sponsored by Representatives Markwayne Mullin (R-OK) and Dave Loebsack (D-IA). The FY21 Senate Dear Colleague Letter sponsored by Senators Kevin Cramer (R-ND) and Jon Tester (D-MT) closed with 35 signatures.

Want to get involved? Send us an email at grc@tscalliance.org to learn more.