Dr. Amy Paller and Northwestern University/Ann & Robert H. Lurie Children’s Hospital of Chicago would like to invite you to participate in a research study on the readiness to transition to an adult model of health care. This study involves completion of an online survey and more information can be found below.
If you are a parent/caregiver of or an adolescent between 14 and 22 years old with tuberous sclerosis or another genetic chronic skin condition, please consider participating in our survey study on transition readiness.
The survey is for the adolescent to take themselves. A parent/caregiver can help the adolescent with explaining questions but cannot answer questions.
- If you/your adolescent is between 14 and 16 years old: https://redcap.link/transitionreadiness14-16
- If you/your adolescent is 17 years old: https://redcap.link/transitionreadiness17
- If you/your adolescent is between 18 and 22 years old: https://redcap.link/transitionreadinessage18-22
This study is Lurie Children’s IRB #2021-4393, Transition Readiness Assessment in Adolescents with Genetic Chronic Skin Disorders, Dr. Amy Paller. The content of this flier has been approved by the Lurie Children’s IRB.