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TSC Matters

Research Updates

Reproductive and Perinatal Health Initiative – Participate in the survey here

The TSC Alliance has launched a Reproductive and Perinatal Health Initiative committed to improving care provided to women with TSC before and during pregnancy. If you are a woman or

Read More: Reproductive and Perinatal Health Initiative – Participate in the survey here

Anya’s Accelerator TAND Biomarker Workshop

With support from the The Ramesh and Kalpana Bhatia Family Foundation, the TSC ...

Read More: Anya’s Accelerator TAND Biomarker Workshop

TSC Researcher Spotlight – Katarzyna “Kasia” Klonowska

Katarzyna “Kasia” Klonowska, PhD, is a 2020 recipient of the TSC Alliance® ...

Read More: TSC Researcher Spotlight – Katarzyna “Kasia” Klonowska

TSC Researcher Spotlight – Felix Chan, PhD

The Developmental Synaptopathies Consortium (DSC) is composed of a group of medi...

Read More: TSC Researcher Spotlight – Felix Chan, PhD

Curing the Epilepsies Conference Summary

The National Institute of Neurological Disorders and Stroke (NINDS) has sponsore...

Read More: Curing the Epilepsies Conference Summary

Meet Some of the TSC Alliance Research Grant Recipients

New research grants awarded by the TSC Alliance in 2020:...

Read More: Meet Some of the TSC Alliance Research Grant Recipients

Participate in the TSC Biosample Repository Project

To better understand why people are impacted so differently by this disorder and...

Read More: Participate in the TSC Biosample Repository Project

Have You or Your Loved One with TSC Been Diagnosed with COVID-19?

The TSC Alliance is reaching out to individuals with TSC who had COVID-19 infect...

Read More: Have You or Your Loved One with TSC Been Diagnosed with COVID-19?

Moving TSC Research Forward in the Face of COVID-19

On Monday, April 6, TSC Alliance staff members from our science department prese...

Read More: Moving TSC Research Forward in the Face of COVID-19

Seeking Volunteers for the TSC Biosample Repository

To learn more about donating to the TSC Biosample Repository click here or con...

Read More: Seeking Volunteers for the TSC Biosample Repository

We are Seeking Volunteers for the TSC Biosample Repository

The purpose of this research project is to collect a sample of blood, tissue, fl...

Read More: We are Seeking Volunteers for the TSC Biosample Repository

TSC Research: Our Vision for 2020

As part of our 45th Anniversary Celebration, during the Fund a Cure portion of t...

Read More: TSC Research: Our Vision for 2020

2019 International TSC Research Conference Review

The 2019 International TSC Research Conference: Changing the Course of TSC, co...

Read More: 2019 International TSC Research Conference Review

TSC Clinical Research Consortium Update

To initiate and implement clinical studies more quickly and effectively, researc...

Read More: TSC Clinical Research Consortium Update

TSC Preclinical Consortium Meeting

The TSC Alliance launched the TSC Preclinical Consortium in 2016, in collabora...

Read More: TSC Preclinical Consortium Meeting
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  • Home
  • Understanding TSC
    ▼
    • What is TSC?
    • Genetics
    • Clinical Manifestations
    • Prognosis
    • Diagnostic criteria
    • Surveillance & treatment
  • Navigating TSC
    ▼
    • Prenatal diagnosis
    • Childhood diagnosis
    • Adult diagnosis
    • Coordination of care
    • Caregiver resources
    • Mental health
    • Surveillance & management
    • Medication access issues
    • Medication resources
    • Pharmacy Resources
  • TAND
    ▼
    • TAND Overview
    • Autism in TSC
    • Dysregulated behaviors
    • Eating and sleep difficulties in TSC
    • Mood and anxiety difficulties in TSC
    • Neuropsychological issues in TSC
    • Overactivity and impulsivity in TSC
    • Scholastic difficulties in TSC
    • Psychosocial issues in TSC
  • Stories of hope
  • Find Support
    ▼
    • Find a TSC Clinic
    • Bcureful travel & lodging assistance
    • Educational support
    • Community support network
    • Connect with a Support Navigator
  • Resources
  • Get Involved
    ▼
    • Volunteer
    • Community Leadership Hub
    • Participate in research
    • Anya’s Accelerator
    • TSC Biosample Repository & Natural History Database
    • Seizures and TSC: your data matters!
    • TSC clinical trials
    • Government advocacy
    • TSC Matters E-Newsletter
    • Become a member
    • Join Team TSC
    • Ways to give
  • News
  • Events
  • Donate
  • About Us
    ▼
    • About the TSC Alliance
    • Our Vision
    • Our Team
    • Our Leadership
    • Our Results
    • Corporate Policies
    • FAQs
    • Careers
  • Healthcare Providers
  • Researchers
    ▼
    • Research Strategy
    • Grants & funding
    • Preclinical research
    • Natural History Database
    • Biosample Repository
    • Clinical Research Consortium
    • TSC Alert
    • Research conferences
    • Manuel R. Gomez Award
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