Back to school support resources
As we approach back to school season, we want to remind you about the support and resources the TSC Alliance provides. Shelly Meitzler, Director, Community Outreach & Support, and
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Nominate a TSC researcher or clinician for the Manuel R. Gomez Award
The TSC Alliance is now accepting nominations for the 2023 Manuel R. Gomez Award...
Read More: Nominate a TSC researcher or clinician for the Manuel R. Gomez Award
11th Annual TSC Global Awareness Day Scheduled for May 15
On May 15, the TSC Alliance® will join tuberous sclerosis complex (TSC) orga...
Read More: 11th Annual TSC Global Awareness Day Scheduled for May 15Introducing FaceForwardwithTSC.com: An Exciting New Resource for Facial Angiofibroma
Nobelpharma America is proud to announce the launch of FaceForwardwithTSC.com. T...
Read More: Introducing FaceForwardwithTSC.com: An Exciting New Resource for Facial AngiofibromaWatch the 2022 World TSC Conference Videos
All 2022 World TSC Conference videos are now available. By accessing these vide...
Read More: Watch the 2022 World TSC Conference VideosWe Need Your Input!
In 2023, the TSC Alliance will update our five-year strategic plan, so we are la...
Read More: We Need Your Input!Have You or Your Loved One with TSC Been Diagnosed with COVID-19?
The TSC Alliance seeks to contact individuals with TSC who had COVID-19 infectio...
Read More: Have You or Your Loved One with TSC Been Diagnosed with COVID-19?In Memory Of Ken Johnson
The TSC Alliance and Endowment Fund Board of Directors recently established the ...
Read More: In Memory Of Ken JohnsonCARING through COVID Survey
For many families of children/adults with genetic syndromes associated with deve...
Read More: CARING through COVID SurveyTSC Clinic Experience of Care Survey
The TSC Alliance would like to know about your experience at the TSC Clinic you/...
Read More: TSC Clinic Experience of Care SurveyHave You or Your Loved One with TSC Been Diagnosed with COVID-19?
The TSC Alliance seeks to contact individuals with TSC who had COVID-19 infectio...
Read More: Have You or Your Loved One with TSC Been Diagnosed with COVID-19?Welcome from Nobelpharma America!
Nobelpharma America is the first global subsidiary of Nobelpharma Co. Ltd (“No...
Read More: Welcome from Nobelpharma America!TSC Clinic Experience of Care Survey
The TSC Alliance would like to know about your experience at the TSC Clinic you/...
Read More: TSC Clinic Experience of Care SurveyHave You or Your Loved One with TSC Been Diagnosed with COVID-19?
The TSC Alliance is reaching out to individuals with TSC who had COVID-19 infect...
Read More: Have You or Your Loved One with TSC Been Diagnosed with COVID-19?Have You or Your Loved One with TSC Been Diagnosed with COVID-19?
The TSC Alliance is reaching out to individuals with TSC who had COVID-19 infect...
Read More: Have You or Your Loved One with TSC Been Diagnosed with COVID-19?TSC Clinic Experience of Care Survey
The TSC Alliance would like to know about your experience at the TSC Clinic you/...
Read More: TSC Clinic Experience of Care SurveyTSC Clinic Experience of Care Survey
The TSC Alliance would like to know about your experience at the TSC Clinic you/...
Read More: TSC Clinic Experience of Care SurveyUpdate on TSC Biosample Repository and Natural History Database Project
Although collections are paused due to COVID-19 concerns, the TSC Alliance is ab...
Read More: Update on TSC Biosample Repository and Natural History Database ProjectTSC Alliance COVID-19 & TSC Resource
The TSC Alliance has assembled a wide range of information and resources about t...
Read More: TSC Alliance COVID-19 & TSC ResourceFDA Approves Sabril Label Expansion For Patients 2 To 10 Years Old
On January 24, the TSC Alliance learned the US Food and Drug Administration (FD...
Read More: FDA Approves Sabril Label Expansion For Patients 2 To 10 Years OldTSC Clinic Experience of Care Survey
The TSC Alliance would like to know about your experience at the TSC Clinic you/...
Read More: TSC Clinic Experience of Care SurveyTSC Alliance Announces New Improving Partnerships and Lives Grant
The TSC Alliance Improving Partnerships and Improving Lives Grant (IPaLG) is des...
Read More: TSC Alliance Announces New Improving Partnerships and Lives GrantImportant Information About Changes to Access and Availability of Generic Everolimus and Afinitor®
As of December 13, 2019, important information is available regarding changes to...
Read More: Important Information About Changes to Access and Availability of Generic Everolimus and Afinitor®TSC Clinic Experience of Care Survey
The TSC Alliance would like to know about your experience at the TSC Clinic you/...
Read More: TSC Clinic Experience of Care SurveyListen and Subscribe to TSC Now
TSC Now is the TSC Alliance’s podcast series, which features interviews wit...
Read More: Listen and Subscribe to TSC NowChanges to TSC Matters in 2020
The TSC Alliance is transitioning to a new email platform in 2020. Be on the loo...
Read More: Changes to TSC Matters in 2020TSC Clinic Experience of Care Survey
The TSC Alliance would like to know about your experience at the TSC Clinic you/...
Read More: TSC Clinic Experience of Care SurveyGrant Opportunities for Families Impacted by Infantile Spasms
Our friends at the Child Neurology Foundation, in partnership with the Harnett ...
Read More: Grant Opportunities for Families Impacted by Infantile SpasmsTSC Alliance Announces New TSC Centers of Excellence
The TSC Alliance is pleased to introduce our new “TSC Center of Excellence” ...
Read More: TSC Alliance Announces New TSC Centers of ExcellenceSubscribe to TSC Now
TSC Now is the TSC Alliance’s podcast series, which features interviews wit...
Read More: Subscribe to TSC NowWhat TSC Means to Me Drawing Contest
In September, the TSC Alliance of Indiana held a “What Tuberous Sclerosis ...
Read More: What TSC Means to Me Drawing ContestBecome a Junior Leader!
We are looking for Junior Leaders for the 2019-2020 school year. The TSC Allianc...
Read More: Become a Junior Leader!TSC Clinic Experience of Care Survey
The TSC Alliance would like to know about your experience at the TSC Clinic you/...
Read More: TSC Clinic Experience of Care SurveyListen to TSC Now
TSC Now is the TSC Alliance’s podcast series, which features interviews wit...
Read More: Listen to TSC NowJoin Team TSC and Run the NYC Marathon!
There are still a few spots left to run with Team TSC in the 2019 TCS New York C...
Read More: Join Team TSC and Run the NYC Marathon!TSC Clinic Experience of Care Survey
The TSC Alliance would like to know about your experience at the TSC Clinic you/...
Read More: TSC Clinic Experience of Care SurveyJoin Team TSC and Run the NYC Marathon!
Team TSC is a dedicated group of people running on behalf of the 50,000 people i...
Read More: Join Team TSC and Run the NYC Marathon!Subscribe to TSC Now
TSC Now is the TSC Alliance’s podcast series, which features interviews with...
Read More: Subscribe to TSC NowJoin Us for an Upcoming TAND Webinar
TAND Webinar: Trauma 101 for Parents of Medically Complex Kids Presented by Caro...
Read More: Join Us for an Upcoming TAND WebinarInternational TAND Research Project Awarded Funding
Congratulations to Drs. Petrus de Vries (University of Cape Town) and Anna Janse...
Read More: International TAND Research Project Awarded FundingTAND Parent/Caregiver Survey: We Need Your Input!
As part of our TSC-Associated Neuropsychiatric Disorders (TAND) Initiative we...
Read More: TAND Parent/Caregiver Survey: We Need Your Input!IEP Season is Approaching
If you need support in understanding your rights as a parent/caregiver of a chil...
Read More: IEP Season is ApproachingCongratulations Dr. Martina Bebin!
Congratulations to Dr. Martina Bebin, former TSC Alliance Board Member and TSC C...
Read More: Congratulations Dr. Martina Bebin!