TSC Alert

Archive for October, 2017

Voice of the Patient Report

  |  News

The TSC Alliance has just submitted the Voice of the Patient report to the US Food and Drug Administration (FDA). This report summarizes the Patient-Focused Drug Development (PFDD) meeting that we held on June 21. The PFDD meeting was designed to communicate to FDA the impacts of TSC on individuals’ daily lives, what types of treatment benefits make the most impact on peoples’ lives, and individuals’ and caregivers’ perspectives on how well available therapies are working. The report is now available on our PFDD page.

AES 2017: TSC Preclinical Consortium Presentation on December 3

If you will be attending the American Epilepsy Society meeting in Washington, DC in December, please join us for TSC Alliance Chief Scientific Officer Dr. Steve Roberds’ presentation on the TSC Preclinical Consortium at 10:30 am, Sunday, December 3 in the Discovery Center.

Join us at AES in Washington, DC

Are you attending the American Epilepsy Society Annual Meeting in Washington, DC in December? If so, please be sure to save the following dates for our events throughout the week: TSC Alliance Reception – Friday, December 1 from 7-9 pm in the Marriott Marquis Washington DC (901 Massachusetts Avenue NW), Monument Room, Meeting Level 4 TSC Special Interest Group Meeting – Saturday, December 2 from 7-8:30 am in Convention Center Room 147 A/B Introduction to the TSC Preclinical Consortium – Sunday, December 3 from 10:30-11 am in the Discovery Center Innovation Pavilion on Infantile Spasms – Monday, December 4 from…