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TSC Alert

Archive for the ‘Clinical Resources’ Topic

New Peer-to-Peer Listserv for Healthcare Professionals

The TSC Alliance invites healthcare professionals affiliated with a TSC Clinic, TSC Center of Excellence, or University Medical Center to subscribe to our new private listserv: p2p@lists.tscalliance.org. Its primary purpose is for members to pose TSC-related cases or questions to their peers for feedback. Members may also use the listserv to seek opportunities for collaboration on TSC-related projects. The listserv will be monitored to ensure it is being used for appropriate communications.

New Free CME Opportunity Available

Hear leading experts in tuberous sclerosis complex (TSC) discuss recent updates to consensus recommendations and offer practical guidance for the diagnosis, surveillance, and management of TSC in a new CME-certified activity from the PeerView Institute for Medical Education: Applying Evidence to Practice–Updated Consensus Recommendations for the Diagnosis, Surveillance, and Management of Tuberous Sclerosis Complex. This opportunity is available until April 13, 2022. Learn More

New Peer-to-Peer Listserv for Healthcare Professionals

The TSC Alliance invites healthcare professionals affiliated with a TSC Clinic, TSC Center of Excellence, or University Medical Center to subscribe to our new private listserv: p2p@lists.tscalliance.org.  Its primary purpose is for members to pose TSC-related cases or questions to their peers for feedback. Members may also use the listserv to seek opportunities for collaboration on TSC-related projects. The listserv will be monitored to ensure it is being used for appropriate communications.

TSC Alliance Partners with NeurologyLive™

The TSC Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. Check out our partner page. Subscribe to NeurologyLive to stay up to date on clinical trial news, FDA updates and more. Subscribe

TSC Alliance Partners with NeurologyLive™

The TSC Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. Check out our partner page. Subscribe to NeurologyLive to stay up to date on clinical trial news, FDA updates and more. Subscribe

New Clinical Trial Finder Tool

The TSC Alliance has partnered with Clinical Trial Connect to develop a user-friendly Clinical Trial Finder Tool to help individuals and families affected by TSC participate in relevant clinical trials. You can find the tool on our website here.

New Clinical Trial Finder Tool

The TSC Alliance has partnered with Clinical Trial Connect to develop a user-friendly Clinical Trial Finder Tool to help individuals and families affected by TSC participate in relevant clinical trials. You can find the tool on our website here. Are you conducting a study involving patients with TSC that isn’t listed in the online tool? Contact Zoë Fuchs, TSC Alliance Science Project Coordinator, at zfuchs@tscalliance.org.

CME Opportunity: 29th Annual Pediatric Neurology Update – April 11, 2019

Childen’s National Health System will be hosting the 29th Annual Pediatric Neurology Update in Rockville, MD on April 11, 2019. Neurosurgical advances in TSC and the transition to adulthood for TSC patients are major foci of this CME opportunity. Speakers include Howard Weiner, MD (Texas Children’s Hospital); Martina E. Bebin, MD, MPA (UAB Tuberous Sclerosis Clinic); and Peter Crino, MD, PhD (University of Maryland).

2017 Year in Review

2017 was a very productive year for advancing the science of tuberous sclerosis complex (TSC)! A very small sampling of our scientific community’s major accomplishments are highlighted below. The TSC Alliance thanks all our grantees, collaborators, reviewers, conference attendees, International Scientific Advisory Board members, and Professional Advisory Board members for making these achievements possible.