Research Study on TSC and COVID-19
The TSC Alliance is collecting clinical information about individuals with TSC who were infected with COVID-19. Please circulate the following to your patients:
Join Our Peer-to-Peer Listserv for Healthcare Professionals
The TSC Alliance invites healthcare professionals affiliated with a TSC Clinic, TSC Center of Excellence, or University Medical Center to subscribe to our private listserv: p2p@lists.tscalliance.org. Its primary purpose is for members to pose TSC-related cases or questions to their peers for feedback. Members may also use the listserv to seek opportunities for collaboration on TSC-related projects. The listserv is monitored to ensure it is being used for appropriate communications. HOW TO SUBSCRIBE: Email apounders@tscalliance.org who will add you as a member. You should receive a “Welcome to list p2p” email from Groups List Manager p2p-request@lists.tscalliance.org to confirm your membership.
TSC Biosamples Available at No Cost to Researchers
Are you looking for samples from TSC patients to use in your lab? The TSC Biosample Repository has a growing collection of samples tied to phenotypic data. In most cases, we can ship these samples at no charge to the investigator.
Save the Date for the 2023 International TSC Research Conference
Mark you calendars now for the 2023 International TSC Research Conference, hosted by the TSC Alliance, scheduled for September 7-9, 2023 at the Omni Shoreham Hotel in Washington, DC. The conference will focus on structured, collaborative discussions on groundbreaking research topics. Conference Co-Chairs: Shafali Spurling Jeste, MD, Chief, Division of Neurology, Co-Director, Neurological Institute, Children’s Hospital, Los Angeles Rebecca Ihrie, PhD, Associate Professor Cell & Developmental Biology and Neurological Surgery, Vanderbilt University School of Medicine Early Career Researcher Symposium Co-Chairs Nicole McDonald, PhD, Assistant Clinical Professor, UCLA Semel Institute Uchenna John Unachukwu, PhD, Associate Research Scientist, Columbia University Medical Center Organizing Committee Members:…
Deadline Friday: TSC Biosample Seed Grants Available
The TSC Alliance announces a funding opportunity for 2022 Biosample Seed Grants to support research using blood, tissue, and/or cells, DNA, or RNA isolated from samples in the TSC Biosample Repository. The award may support laboratory supplies, personnel costs, services, or equipment necessary to conduct the proposed research. Funds requested can be up to $20,000. Funding period is one year. The TSC Biosample Repository houses human biological materials linked to detailed clinical data in the TSC Natural History Database. High-quality biosamples and their associated clinical data enable researchers to discover biomarkers, establish human cell lines or tissue arrays for drug testing, and…