Nominate a TSC Researcher for the 2023 Manuel R. Gomez Award
The TSC Alliance is now accepting nominations for the 2023 Manuel R. Gomez Award, which will be awarded at the 2023 International TSC Research Conference. The deadline to submit a nomination is Friday, June 2, 2023.
Now Accepting Nominations for the 2023 Manuel R. Gomez Award
The TSC Alliance grants the Manuel R. Gomez Award to individuals who have made a significant impact on our understanding of TSC in research, and/or have impacted the delivery of clinical care for individuals with TSC.
TSC Alliance Partners with NeurologyLive™
The TSC Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. Check out our partner page. Subscribe to NeurologyLive to stay up to date on clinical trial news, FDA updates and more.
What’s With the New Look?
On Sunday May 16, the Tuberous Sclerosis Alliance formally unveiled a new brand and new name: TSC Alliance. We also introduced a new tagline, “Hope no matter how complex.”
TSC Alliance Partners with NeurologyLive™
The TSC Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. Check out our partner page. Subscribe to NeurologyLive to stay up to date on clinical trial news, FDA updates and more. Subscribe
Heart of Genetic Counseling Award
Each year, the National Society of Genetic Counselors and Invitae sponsor The Heart of Genetic Counseling Award, which honors excellence in patient care provided by genetic counselors during some of the most challenging moments of a patient’s health journey.
TSC Alliance Partners with NeurologyLive™
The TSC Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. Check out our partner page. Subscribe to NeurologyLive to stay up to date on clinical trial news, FDA updates and more. Subscribe
Seeking Volunteers for a Study Evaluating Perspectives on the Return of Individual Research Data
Are you interested in participating in research? The University of Rochester is studying the topic of sharing research information with research participants. Participants receive $40. You May Qualify If You Are A caregiver of an individual with a rare disease A clinician researcher A clinician An IRB representative A Sponsor or drug development company representative Participation Involves Completing a recorded zoom interview with a member of the study team. Interviews take 60-90 minutes. During the interview, you will be asked about your ideas and suggestions related to sharing research information with research participants. Interested? Call the study team at 585-276-3987 or…
TSC Alliance Partners with NeurologyLive™
The TSC Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. Check out our partner page. Subscribe to NeurologyLive to stay up to date on clinical trial news, FDA updates and more. Subscribe
COVID-19 Considerations for TSC Medical Professionals
UPDATE: The Department of Health & Human Services (HHS), in coordination with NIH and Operation Warp Speed, has launched a central web portal called Combat COVID (combatcovid.hhs.gov/).