The TSC Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. Check out our partner page. Subscribe to NeurologyLive to stay up to date on clinical trial news, FDA updates and more.
The TSC Alliance is collecting clinical information about individuals with TSC who were infected with COVID-19. Please circulate the following to your patients: The TSC Alliance is collecting clinical information in their TSC Natural History Database about individuals with TSC who were infected with COVID-19. TSC researchers will use this information to help determine how medications such as everolimus (Afinitor®, Zortress®) or sirolimus (Rapamune®) and other TSC conditions affect the risk of getting COVID-19 and its severity. If you or your loved one with TSC had COVID-19 confirmed by testing, please consider participating in the TSC Alliance Natural History Database….
The TSC Alliance invites healthcare professionals affiliated with a TSC Clinic, TSC Center of Excellence, or University Medical Center to subscribe to our private listserv: firstname.lastname@example.org. Its primary purpose is for members to pose TSC-related cases or questions to their peers for feedback. Members may also use the listserv to seek opportunities for collaboration on TSC-related projects. The listserv is monitored to ensure it is being used for appropriate communications.
Are you looking for samples from TSC patients to use in your lab? The TSC Biosample Repository has a growing collection of samples tied to phenotypic data. In most cases, we can ship these samples at no charge to the investigator.
Now Accepting Abstract Submissions Studies on basic, translational, and clinical/psychosocial aspects of tuberous sclerosis, and lymphangioleiomyomatosis are welcomed.
This year, together with the TAND consortium, The Tuberous Sclerosis Association in the UK is running their first ever TAND-centered funding round. The remit of this call is to offer small ‘seed’ grants (€2,000-€10,000 per award) to international researchers, in particular early career investigators (up to 10 years post PhD).
2022 Grant LOIs Due April 18! Log in to Proposal Central and search for the TSC Alliance 2022 Research Grant and Postdoctoral Fellowship program now.