TSC Alert

Archive for January, 2020

New Clinical Trial Finder Tool

The TSC Alliance has partnered with Clinical Trial Connect to develop a user-friendly Clinical Trial Finder Tool to help individuals and families affected by TSC participate in relevant clinical trials. You can find the tool on our website here. Are you conducting a study involving patients with TSC that isn’t listed in the online tool? Contact Zoë Fuchs, TSC Alliance Science Project Coordinator, at zfuchs@tscalliance.org.

Contribute to a Study About Standard Neurological Care in TSC Children

  |  News

Information about the Warsaw Medical University study: Tuberous sclerosis complex (TSC) is a disease with a very high risk of epilepsy and its comorbidities, such as intellectual disability and autistic behavior with significant impact on the daily life of families with this condition.

Call for Abstracts: 2020 International LAM Research Conference

The LAM Foundation is now accepting abstracts for the 2020 International LAM Research Conference. Submission Deadline:  Friday, January 31, 2020. Studies on basic, translational, and clinical/psychosocial aspects of tuberous sclerosis and lymphangioleiomyomatosis (LAM) are welcomed. To begin your submission you must log in to the Foundation’s grant/abstract website – CLICK HERE.