TSC Alert

Archive for August, 2019

TSC Biosamples Available at No Cost to Researchers

Are you looking for samples from TSC patients to use in your lab? The TSC Biosample Repository has a growing collection of samples tied to phenotypic data. In most cases, we can ship these samples at no charge to the investigator. By the end of May 2019, we have shipped 749 samples for use in diverse projects, ranging from quantification of sphingolipids in plasma to investigating mitochondrial DNA heteroplasmy.

2019 International TSC Research Conference Review

Thank you to everyone who attended the 2019 International TSC Research Conference: Changing the Course of TSC in Toronto. You can view the Conference Program Book here. The conference, co-sponsored with Tuberous Sclerosis Canada Sclérose Tubéreuse (TSCST) and the TSC Alliance of Mexico, welcomed 251 people from 28 countries and featured 34 oral presentations and 62 posters (including posters on the TSC Natural History Database and Biosample Repository, and the TSC Preclinical Consortium). A full summary of the conference will be featured in the Fall 2019 issue of Perspective magazine. You can subscribe to Perspective here.

Contribute to a Study About Standard Neurological Care in TSC Children

Information about the Warsaw Medical University study: Tuberous sclerosis complex (TSC) is a disease with a very high risk of epilepsy and its comorbidities, such as intellectual disability and autistic behavior with significant impact on the daily life of families with this condition. We are currently conducting an inquiry study about a worldwide standard practice of neurological care of children with TSC and we would like to invite you to take part in this study. Your name/site has been selected for this survey due to your presence at the TSC conferences in the last 3 years or was indicated by…

TANDem Research Project Positions Available

  |  News

The TANDem team is seeking two highly motivated and enthusiastic applicants to join their dynamic and international research consortium. Positions available in Belgium or South Arica include: PhD Student (four years, full-time) TANDem Project Coordinator (four years, full-time) See the job descriptions above for minimum qualifications. The deadline to apply is August 31, 2019. To apply send your motivational letter and CV via email to Prof. Petrus de Vries (petrus.devries@uct.ac.za) and Prof. Anna Jansen (anna.jansen@uzbrussel.be).