TSC Alert is a monthly e-newsletter for researchers and healthcare professionals. Subscribe to be the first to hear about our funding opportunities, research resources and conferences.
Renton, WA Walk
As part of the 2023 Step Forward to Cure TSC® Global Hybrid Walk-Run-Ride, the TSC Alliance is hosting a month-long series of walks, runs and rides across the country! Find a walk near you or participate virtually by registering at stepforwardtocuretsc.org. The Renton, WA walk will be on Sunday, April 30, 2023 at the Renton Community Center. For more information or volunteer opportunities contact Gloria Triebenbach, Adrienne Wasserman or Lee Triebenbach. Read More
22nd Annual Comedy for a Cure
Join us for an evening of laughter and hope. A pre-event cocktail reception begins at 5 pm with red carpet arrivals, hors d’oeuvres and lively silent auction, followed by dinner and a presentation of our honorees. The night concludes with an exciting live auction and dynamic comedic performances. Learn more and get your tickets now at www.comedyforacure.org. Read More
Nashville, TN Walk
As part of the 2023 Step Forward to Cure TSC® Global Hybrid Walk-Run-Ride, the TSC Alliance is hosting a month-long series of walks, runs and rides across the country! Find a walk near you or participate virtually by registering at stepforwardtocuretsc.org. The Nashville, TN walk will be on Saturday, April 29, 2023 at Edwin Warner Park (Shelter 5). For more information or volunteer opportunities contact Sandy Ewing or Lauren Perry. Read More
Fishers, IN Walk
As part of the 2023 Step Forward to Cure TSC® Global Hybrid Walk-Run-Ride, the TSC Alliance is hosting a month-long series of walks, runs and rides across the country! Find a walk near you or participate virtually by registering at stepforwardtocuretsc.org. The Fishers, Indiana walk will be on Saturday, April 15, 2023 at Roy G. Holland Memorial Park. For more information or volunteer opportunities contact Cassie Souder. Read More
2023 TCS New York City Marathon
Team TSC is a dedicated group of people running on behalf of the 50,000 people in the US and 1 million worldwide with tuberous sclerosis complex (TSC). The TSC Alliance and Team TSC are proud to be an Official Charity Partner with the 2023 TCS New York City Marathon on Sunday, November 5, 2023. The TSC Alliance is thrilled to have five (5) entries for this event. Each Team TSC member has pledged to raise at least $5,000 for the TSC Alliance as part of his/her participation in the marathon. Read More
Research Study on TSC and COVID-19
The TSC Alliance is collecting clinical information about individuals with TSC who were infected with COVID-19. Please circulate the following to your patients: Read More
American Epilepsy Society Research Grant Opportunities
The American Epilepsy Society (AES) is proud to support established investigators working in basic, translational, and clinical research for epilepsy, seizures, and related disorders. Read More
TSC Biosamples Available at No Cost to Researchers
Are you looking for samples from TSC patients to use in your lab? The TSC Biosample Repository has a growing collection of samples tied to phenotypic data. In most cases, we can ship these samples at no charge to the investigator. Read More
Join Our Peer-to-Peer Listserv for Healthcare Professionals
The TSC Alliance invites healthcare professionals affiliated with a TSC Clinic, TSC Center of Excellence, or University Medical Center to subscribe to our private listserv: p2p@lists.tscalliance.org. Read More
Save the Date for the 2023 International TSC Research Conference
Mark you calendars now for the 2023 International TSC Research Conference, hosted by the TSC Alliance, scheduled for September 7-9, 2023 at the Omni Shoreham Hotel in Washington, DC. The conference will focus on structured, collaborative discussions on groundbreaking research topics. Read More