Because current data do not provide clear answers for many TSC patients’ questions, drawing on opinions from key leaders in TSC clinical care, the TSC Alliance’s Science and Medical Committee offers some general considerations for how to answer questions from TSC patients about COVID-19 and how to provide individualized care for TSC patients during the COVID-19 pandemic based on the information available to date in the publication listed below.

Download Physician Recommendations

The TSC Alliance also developed a letter template physicians can use for their patients who are having trouble with their insurer paying for 90-day supply of their medications.

Download Letter

You can see all of the TSC Alliance’s COVID-19 recommendations here.